Currently, the EXOMA2 study (NCT04614480) offers earlier and more comprehensive exome analysis in the management of cancer patients than EXOMA. Based on the active EXOMA2 patient file, the INFOGene study offers the opportunity to study patient-physician communication, to assess patient preferences with regard to different information modalities concerning theranostic exome analysis, and to reflect on information modalities to ensure optimal patient comprehension of the information provided.
The qualitative cross-sectional study includes a dual observational and interventional component involving cancer patients. The patients will come from the EXOMA 2 active file at Dijon University Hospital and the CGFL.
Patient identified for inclusion in the EXOMA 2 study (exome analysis request)
Available to receive different types of information
Fluent in French
No prior oncogenetic consultation
Patient who refused to participate in the EXOMA2 study (for phase 3 patients only)
Has a psychiatric, cognitive or neurological disorder that makes participation impossible
Working in the field of genetics
Sequential
Cancer patients' preferences regarding genetic information modalities prior to theranostic exome analysis
Other interventionPhase 1: Observation of doctor-patient consultations Phase 2: Adaptation of information tools Phase 3: Assessment of understanding of information tools
Concepts of communication and preferences.
The various interviews (phases 1 and 3) will provide an insight into patients' level of health literacy, which may explain the ease or difficulty of exchanges with the doctor (phase 1), as well as patients' preferences for one type of information over another (phase 3).
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