Fibromuscular dysplasia (FMD) is a disease of the arteries that is not due to plaque build-up or inflammation. While some patients with FMD are health, some may experience heart attacks, strokes, aneurysms or blood vessel dissection/tearing which can be life-threatening. It predominantly impacts women and younger patients. As a result of this diagnosis, many patients are counseled to restrict or avoid certain physical activities out of concern for provoking or worsening vascular complications. There are no guidelines or consensus recommendations regarding appropriate physical activity for patients with FMD. The lack of consensus may lead to confusion for patients and may negatively impact their quality of life. This study will conduct a large, national survey of patients with FMD to assess the type of physical activity restrictions and impact on quality of life and emotional well-being.
Participants with a diagnosis of fibromuscular dysplasia
Age range = 18-100 years
Subjects who have an inability to complete the electronic consent form or electronic survey for any reason
Subjects who are non-English speaking who cannot read the electronic consent form or electronic survey
Individuals with a diagnosis of fibromuscular dysplasia
Other
Cross-sectional
Not listed
Clinician-Recommended Physical Activity Restrictions
Prevalence and type of clinician-recommended physical activity restrictions among patients diagnosed with fibromuscular dysplasia (FMD), including aerobic, resistance, and activity-specific limitations.
Self-Reported Change in Physical Activity Following Diagnosis
Change in physical activity behavior following FMD diagnosis based on patient self-report.
Emotional Impact of Physical Activity Recommendations
Self-reported anxiety or depression to physical activity recommendations and/or disease-related limitations.
Physical Impact of Activity Recommendations
Self-reported physical consequences (e.g. weight gain, sedentary lifestyle) associated with modification of activity level following FMD diagnosis.
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Vanderbilt University Medical Center
Lead sponsor
Fibromuscular Dysplasia Society of America
Collaborator
