Survey to Determine Incarcerated Persons' Views on Surrogate Decision Making

Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18-120
SponsorNational Institutes of Health Clinical Center (CC)

About this trial

Background:

About 180,000 of the people in US prisons are over 55 years old. Aging people often cannot make medical decisions on their own. People who cannot make their own decisions must rely on a "surrogate." A surrogate is someone who helps the person's doctor make decisions for them. Researchers want to conduct a survey to ask people in prison who they would like to be their surrogates. But first, they need to find out if their survey questions are clear and easy to understand.

Objective:

To get imprisoned people's feedback on survey questions about surrogate decision making.

Eligibility:

People currently imprisoned in a US facility with access to Edovo. They must be able to read and write in English.

Design:

Participants will answer 26 survey questions. The questions will be on the Edovo Learn software platform. After each question, they will be asked: "Was this question clear? If not, please explain in the box below what you found unclear. Also, if you have any suggestions for how we might make the question clearer, please include them."

Participants will be asked to imagine themselves in a situation where they cannot make their own medical decisions. They may skip questions or stop the survey if they want. No information that identifies them will be collected.

The survey will take about 15 minutes.

Eligibility criteria

This trial accepts healthy volunteers

Qualifiers

Currently incarcerated in a United States facility with Edovo educational tablets

Ability to understand the consent form and survey

Willingness to give informed consent

Disqualifiers

None

Trial population

Adults who are currently incarcerated in the United States

Trial design

Design model

Other

Time perspective

Cross-sectional

Treatments tested in this trial

  • Survey

    Other intervention

    Tablet based survey

Treatment groups

75,000 Participants
are divided into 1 treatment group
Group A: Incarcerated adults1 intervention

Trial outcomes

Primary outcomes

1

Views on surrogates

Incarcerated persons preferences for surrogate decision-makers if they become unable to make their own medical decisions.

Time frame
end of study
2

Views on PPP

Proportion of incarcerated persons who endorse the use of a PPP for medical decision-making for incarcerated persons who become unable to make their own medical decisions.

Time frame
end of study

Secondary outcomes

Other outcomes

Sponsors and contacts

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