Swiss Childhood Cancer Survivor Study
ConditionChildhood Cancer
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age5+
SponsorUniversity of Bern
About this trial
The SCCSS is designed to investigate which long-term effects childhood cancer and its treatment have on survivors, and includes those who were under 20 years when they were diagnosed. The SCCSS explores childhood cancer survivors' quality of life, the health care received by childhood cancer survivors during follow-up care, the effects of medication, somatic and psychosocial health issues, how childhood cancer survivors take care of their own health including health behaviors, and also collects demographic details like family background, education and profession. To learn more about these topics, the investigators send questionnaires to childhood or adolescent cancer survivors. The investigators use the results to inform physicians and patients, and to improve treatment of childhood cancer and follow-up.
Eligibility criteria
This trial accepts healthy volunteersQualifiers
Who were diagnosed with cancer at age <20 years
Who have survived at least 5 years after cancer diagnosis
Who were Swiss residents when they were diagnosed, and
Who gave informed consent
Disqualifiers
None
Trial population
Childhood cancer survivors: All living individuals who were diagnosed with cancer at age \<20 years, have survived at least 5 years after cancer diagnosis, and who were Swiss residents when they were diagnosed. Siblings: brothers and sisters of childhood cancer survivors.
Trial design
Design model
Cohort
Time perspective
Prospective
Treatments tested in this trial
Not listed
Trial groups
No trial groups listed
Trial outcomes
Primary outcomes
1
Long-term outcomes of survivors of childhood and adolescent cancer
Incidence and spectrum of various somatic and psychosocial outcomes including describing the cause-specific long-term mortality, the number of patients with second primary malignancies and somatic health effects, and describe medication use, mental health status, educational achievements, and health-related quality of life of childhood cancer survivors as assessed by questionnaires and data from the Swiss Childhood Cancer Registry.
Time frame
Baseline medical information and questionnaire data collection among those who survived at least 5 years, follow-up data collection at regular intervals (+/- every 5 years, 40 years) afterwards.Secondary outcomes
1
Risk factors of long-term outcomes of survivors of childhood and adolescent cancer
Association of long-term outcomes with risk factors like tumour, treatment modalities, and demographic characteristics as assessed by questionnaires and data from the Swiss Childhood Cancer Registry.
Time frame
Baseline medical information and questionnaire data collection among those who survived at least 5 years, follow-up data collection at regular intervals (+/- every 5 years, 40 years) afterwards.Sponsors and contacts
Click on the lead sponsor to view all of their trials.
University of Bern
Lead sponsor
Swiss Pediatric Oncology Group
Collaborator
Source ClinicalTrials.gov