Synovial Sarcoma Registry / Biospecimen Repository

Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorChildren's Hospital of Philadelphia

About this trial

The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing.

Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.

Eligibility criteria

This trial does not accept healthy volunteers

Qualifiers

Males or females of any age

Reported diagnosis of synovial sarcoma

Informed consent from subject (aged ≥18 years) or parent/guardian

Disqualifiers

Individuals with sarcomas that do not fit the definition of those considered for this registry

Individuals who are unwilling to participate

Individuals who are unwilling or unable to provide written consent

Trial population

Males and females of any age with a reported diagnoses of synovial sarcoma.

Trial design

Design model

Other

Time perspective

Other

Treatments tested in this trial

Not listed

Trial groups

No trial groups listed

Trial outcomes

Primary outcomes

1

Number of patients with synovial sarcoma

Number of patients with synovial sarcoma

Time frame
Up to 10 years

Secondary outcomes

Other outcomes

Sponsors and contacts

Click on the lead sponsor to view all of their trials.