It is critical to provide accessible evidence-based psychosocial support to parents and caregivers of children with cancer (PCCC) in order to mitigate individual and family-level psychosocial risks. This effectiveness trial evaluates an eHealth intervention for English- and Spanish-speaking (PCCC) with study endpoints focused on decreasing negative psychosocial sequelae (acute distress, posttraumatic stress, and anxiety) and improving coping abilities (coping self-efficacy, cognitive coping strategies). The long-term goal of this research program is to sustain and disseminate an effective, scalable, high-reach, and cost-effective intervention to provide crucial support to PCCC across the pediatric cancer trajectory.
Participants must be the parent or primary caregiver of a child (ages 0 - 18 years old) diagnosed with cancer.
Participants must be able to speak and read English or Spanish.
Participants must have access to the internet through a computer or mobile device (e.g., smartphone, tablet).
PCCC are ineligible to participate if their child is not expected to live longer than six months from the time of potential recruitment
Parallel
eSCCIP/eSCCIP-SP
BehavioraleSCCIP/eSCCIP-SP is a psychosocial eHealth intervention for PCCC. It consists of four self-guided, web-based modules (including an introductory module) and three telehealth sessions with a study interventionist.
Coping Space
BehavioralCoping Space is a psychosocial informational website for PCCC.
K-6
Questionnaire to measure acute distress.
Multidimensional Scale of Perceived Social Support
Questionnaire to measure perceived social support from family, friends, and significant other.
The COVID-19 Exposure and Family Impact Scale (CEFIS)
The CEFIS assesses the extent to which a family has experienced or been "exposed" to COVID-19 related potentially traumatic events (e.g., economic changes, illness in family) and the impact of these events on the family's functioning and wellbeing.
Coping Self-Efficacy Scale
Questionnaire to measure perceived ability to cope effectively with challenging situations across three domains (use problem-focused coping, stop unpleasant emotions and thoughts, get support from friends and family).
Cognitive Emotion Regulation Questionnaire
Questionnaire to identify cognitive coping strategies used after a negative event or situation. Measures nine different cognitive coping strategies.
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Nemours Children's Clinic
Lead sponsor
M.D. Anderson Cancer Center
Collaborator
Children's Hospital Los Angeles
Collaborator
University of Virginia
Collaborator
