The Appendix Cancer PMP Research Foundation Natural History Study/Patient Registry
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorAppendix Cancer Pseudomyxoma Peritonei Research Foundation
About this trial
ACPMP's first-ever patient-powered global patient registry/natural history study collects patient and caregiver information and data to fuel clinical trials and drive breakthroughs for appendix cancer and PMP. We've invested the time and resources to make our Registry regulatory grade. Our Registry operates under active, ongoing Institutional Review Board (IRB) oversight by independent ethicists. It is powered by NORD's IAMRARE®, an industry gold standard platform built to be consistent with FDA's best thinking on natural history studies.
Eligibility criteria
Qualifiers
Diagnosis of appendix cancer.
Meets the study inclusion criteria for participation.
Participant or, when applicable, a legally authorized representative (LAR) is able to provide informed consent and enter information into the Registry.
A designated representative may provide retrospective information for an individual who died from appendix cancer, as permitted by the study protocol.
Disqualifiers
Individuals who do not meet the study inclusion criteria.
Individuals for whom required informed consent cannot be obtained.
Trial design
Treatments tested in this trial
- Not listed
Trial groups
10,000 Participants
are grouped into 1 trial groupSponsors and collaborators
Appendix Cancer Pseudomyxoma Peritonei Research Foundation
Lead sponsor
National Organization for Rare Disorders
Collaborator
Source ClinicalTrials.gov