Health Trials

AXIS MG Patient Registry

ConditionsMyasthenia Gravis (MG)Myasthenia Gravis, GeneralizedMyasthenia Gravis, OcularMyasthenia Gravis CrisisMyasthenia Gravis Associated With ThymomaMyasthenia Gravis ExacerbationsMyasthenia Gravis GeneralisedMyasthenia Gravis GeneralizedMyasthenia Gravis, ThymectomyMyasthenia GravisMyasthenia Gravis, MuSKAChR Myasthenia GravisAChR-Ab Seropositive Generalized Myasthenia GravisMGMG - Myasthenia Gravis
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorAutoimmune Neurology Alliance

About this trial

The goal of the AXIS Autoimmune Neurology Registry is to learn about the experiences of adults living with autoimmune neurological disorders, starting with myasthenia gravis (MG), over time.

The main questions the registry aims to answer are:

* How do symptoms, daily functioning, and quality of life change over time? * What treatments do participants use, and how are these treatments related to their symptoms and health? * What challenges do participants experience with treatment, including side effects, treatment burden, missed doses, and access to care?

Participants will:

* Join the registry and complete an enrollment survey (online or through a mobile app) * Complete a brief online survey about their MG approximately once a month * Provide information that can help confirm their MG diagnosis * Optionally, share their medical records with the research team

This is an observational study. The registry will not assign treatments or ask participants to change their medical care. Information collected through the registry may help researchers better understand MG and improve future research and care.

Eligibility criteria

Qualifiers

Physician-confirmed diagnosis of myasthenia gravis (MG)

Willing and legally able to provide consent

Lives in the United States

Disqualifiers

Unwilling or unable to provide consent or comprehend and complete questionnaires

Cognitively impaired adults/unable to comprehend or understand the consent or overall study information

Trial design

Treatments tested in this trial

  • Not listed

Trial groups

1,000 Participants
are grouped into 1 trial group

Sponsors and collaborators

Autoimmune Neurology Alliance

Lead sponsor

Alira Health

Collaborator

Source ClinicalTrials.gov