The International Registry for Leigh Syndrome

ConditionsLeigh Syndrome Leigh Disease Leigh's Necrotizing Encephalopathy Subacute Necrotizing Encephalomyopathy Subacute Necrotizing Encephalomyelopathy

Trial statusRecruiting

Trial phaseNot listed

Trial typeObservational

Biological sexAll

Age0-100

SponsorThe University of Texas Health Science Center, Houston

About this trial

The purpose of this study is to develop a database containing clinical and laboratory information for patients with Leigh syndrome. The goal is to provide a greater understanding of Leigh syndrome allowing further characterization of this disease.

Eligibility criteria

This trial does not accept healthy volunteers

Qualifiers

All participants with a diagnosis of Leigh syndrome will be invited to participate

Disqualifiers

People without Leigh syndrome

Trial population

People with a diagnosis of Leigh syndrome.

Trial design

Design model

Case-only

Time perspective

Other

Treatments tested in this trial

Not listed

Trial groups

200 Participants

are grouped into 1 trial group

Group A: Leigh syndrome

Trial outcomes

Primary outcomes

Phenotypical characteristics of Leigh syndrome

The goal of this project is to collect longitudinal data on the natural history of Leigh syndrome.

Time frame

10 years

Sponsors and contacts

Click on the lead sponsor to view all of their trials.

The University of Texas Health Science Center, Houston

Lead sponsor

Source ClinicalTrials.gov

Apply now