The Leukemia and Lymphoma Society (LLS) National Research Registry

ConditionBlood Cancer
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age21+
SponsorBlood Cancer United

About this trial

The Leukemia and Lymphoma Society (LLS) has built a National Research Registry to evaluate real world experiences and medical outcomes for people with blood cancer, before, during, and after blood cancer treatments.

Eligibility criteria

This trial does not accept healthy volunteers

Qualifiers

None

Disqualifiers

None

Trial population

People with blood cancer, before, during, and after blood cancer treatments.

Trial design

Design model

Cohort

Time perspective

Retrospective

Treatments tested in this trial

  • any/all treatments for blood cancer

    Other intervention

    Following people undergoing any/all treatments for blood cancer.

Treatment groups

No treatment groups listed

Trial outcomes

Primary outcomes

1

LLS will monitor outcomes of people being treated for blood cancer.

. The LLS National Research Registry will collect data on up to 1000 research subjects, over up to 10 years, storing that data, including protected health information (PHI) and images, in secure databases, and share de-identified summary data with research partners (like academic researchers, advocacy groups, and pharmaceutical companies) that are advancing treatments for blood cancer. Participation in The LLS National Research Registry may not give research subjects any immediate benefit. It is hoped the knowledge gained from data collected in The LLS National Research Registry will benefit people with blood cancers in the future using this information for research purposes, directed at blood cancers and associated comorbidities.

Time frame
10 years

Secondary outcomes

Other outcomes

Sponsors and contacts

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