The National Amyotrophic Lateral Sclerosis Registry

Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorCenters for Disease Control and Prevention

About this trial

The purpose of this registry is to (A) better describe the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, such as environmental and occupational, that may be associated with the disease; (C) better outline key demographic factors (such as age, race or ethnicity, gender, and family history of individuals who are diagnosed with the disease) associated with the disease; and (D) better examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.

Eligibility criteria

This trial does not accept healthy volunteers

Qualifiers

None

Disqualifiers

None

Trial population

ALS cases in the United States

Trial design

Design model

Other

Time perspective

Other

Treatments tested in this trial

Not listed

Trial groups

No trial groups listed

Trial outcomes

Primary outcomes

1

The National Amyotrophic Lateral Sclerosis (ALS) Registry

To determine the incidence and prevalence of Amyotrophic Lateral Sclerosis in the US.

Time frame
1 year

Secondary outcomes

1

Risk factors of ALS

To learn more about the potential risk factors for ALS

Time frame
1 year

Other outcomes

Sponsors and contacts

Click on the lead sponsor to view all of their trials.

Centers for Disease Control and Prevention

Lead sponsor

US Department of Veterans Affairs

Collaborator

Centers for Medicare and Medicaid Services

Collaborator