Children and young people (CYP) with chronic kidney disease (CKD) say that physical activity, school, social activities and tiredness are the main issues they want to improve. As CKD in CYP is a rare disease, there is not much research into understanding these aspects, making it difficult to know how to support patients better. This project aims to investigate how physically active CYP with CKD are, and what psychosocial factors are affected by their illness. CYP aged 6-18 will take part in a battery of physical activity tests, par-take in an online survey looking at physical activity, quality of life, mental health, fatigue and strengths and difficulties, and take part in an interview to better understand what it is like to live with CKD.
CYP of school age between 6 and 18 years
Living and receiving care in Scotland for CKD
no clinical contradictions to physical function assessments
Enrolment in other clinical trials in which treatment is masked/blinded
Deemed to be clinically unstable by treating physician for participating in physical activity and exercise
Severe cognitive impairment (as will be unable to give consent)
Aged <6 or >18 years.
Single group
Exercise
BehavioralPhysical activity promotion and engagement
Physical Activity: cardiorespiratory fitness
Multistage Bleep Test - This test entails a progressively incremental jogging/running challenge along a 20-meter distance while keeping to an auditory signal. The test is terminated when participants cannot maintain pace to the auditory signal or upon participant refusal to continue.
Physical Activity: forearm strength
Handgrip test - This test assesses static forearm strength using a handheld dynamometer.
Physical Activity: muscular endurance
Sit-up test - This test will assess muscular endurance, particularly abdominal strength (dynamic trunk strength).
Accelerometer
Participants will be given an accelerometer to be worn around their wrist. This device tracks step counts continuously for 7-days. Average daily step counts, and average sedentary time will be calculated.
Frequency of physical activity
The Physical Activity Questionnaire for older children (PAQ-C) aged 8-14 will be used to measure general levels of PA throughout the school year. Physical activity summary score will be calculated on a scale from 1-5. A score of 1 indicates low physical activity, whereas a score of 5 indicates high physical activity.
Frequency of physical activity
The Physical Activity Questionnaire for adolescents (PAQ-A) aged 14-18 will be used to measure general levels of PA throughout the school year. Physical activity summary score will be calculated on a scale from 1-5. A score of 1 indicates low physical activity, whereas a score of 5 indicates high physical activity.
Quality of Life
The multidimensional Paediatric Quality of Life Inventory (PedsQLv4) questionnaire will be used to estimate scores that reflect the domains of physical functioning, emotional functioning, social functioning, and school functioning. A quality of life score will be calculated on a scale from 0-100. Higher scores = Better HRQOL.
Fatigue
The multidimensional Fatigue scale (PedsQLv3 Fatigue) questionnaire will be used to estimate scores that reflect the domains of general fatigue, sleep/rest fatigue and cognitive fatigue. A Fatigue HRQOL score will be calculated on a scale from 0-100. Higher scores = Better HRQOL and fewer problems or symptoms
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