About this trial
The goal of this study is to comprehensively measure ongoing concerns and unmet needs of individuals living with ovarian cancer. To accomplish this, the UNderstanding The experience of Ovarian cancer - Life after Diagnosis (UNTOLD) study will be conducted using a mixed-methods approach. Ovarian cancer survivors will be enrolled to participate in UNTOLD to complete a one-time survey regarding their experiences. Up to 40 survivors will be subsequently identified to complete a follow-up interview. To ensure these sample sizes, along with a representative sample, a combined recruitment strategy will be employed using the California Cancer Registry (population-based) and recruitment through ovarian cancer advocacy groups.
Eligibility criteria
This trial does not accept healthy volunteersQualifiers
Ability to read and write in English
Diagnosed with ovarian cancer (ovarian, primary peritoneal, fallopian tube)
Disqualifiers
None
Trial population
Ovarian cancer survivors will be enrolled to participate in UNTOLD to complete a one-time survey regarding their experiences.
Trial design
Other
Prospective
Treatments tested in this trial
Not listed
Trial groups
Trial outcomes
Primary outcomes
Supportive Care Needs
Composite Supportive Care Needs Survey - Short Form (SCNS-SF34) score minimum: 34, maximum: 170; continuous score; presented as mean and standard deviation.
Secondary outcomes
Quality of Life - Average FACT general total score
FACT-General total score minimum 0, maximum 108; continuous score; presented as mean and standard deviation
Sponsors and contacts
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Masonic Cancer Center, University of Minnesota
Lead sponsor
Centers for Disease Control and Prevention
Collaborator