The aim of this BZKF project is to record the current care structure for breast cancer patients in order to use this as a basis for developing possible future models for improvement. The active involvement of representatives of regional and national patient organizations in the creation of a patient-based and patient-oriented survey ensures that the needs of patients are the focus. In addition to and in contrast to other projects, relevant questions are explicitly addressed not only to patients but also to physicians in order to identify and specify the interfaces between patient wishes/suggestions and to develop clinical consequences for care.
The first objective is to survey the "current situation" by recording the current care structure for breast cancer. The focus is on the survey of both groups on patient-physician communication, time management and coping strategies.
By planning the future harmonization of national data structures, the basis is created for the long-term goal of an improved "target", a concept developed jointly by physicians and patients for an improved communication and care structure that focuses on the patient.
Breast cancer or DCIS
women and men aged 18 years and older
women and men < 18 years
no histologically confirmed breast cancer or DCIS diagnosis
Women and men aged 18 years and older with breast cancer. Physicians treating breast cancer patients.
Other
Retrospective
Questionnaire patients
Other interventionCompletion of a two-part questionnaire with a special focus on communication around the breast cancer diagnosis. Tumor stage and therapies received are also surveyed. The questionnaire can be answered online via a secure tool (REDCap) or in paper form.
Questionnaire physicians
Other interventionCompletion of a questionnaire with a special focus on communication around the breast cancer diagnosis
Current state of care - patient view
The primary aim of the questionnaire is to record the current reality of care for breast cancer patients with a focus on communication.
Current state of care - physician view
Secondarily, a comparison will be made with the physicians assessment of the same topics
Click on the lead sponsor to view all of their trials.
University Hospital Augsburg
Lead sponsor
Wuerzburg University Hospital
Collaborator
Technical University of Munich
Collaborator
LMU Klinikum
Collaborator
University Hospital Regensburg
Collaborator
University Hospital Erlangen
Collaborator
Bavarian Cancer Research Center (BZKF)
Collaborator
