World Bleeding Disorders Registry
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorWorld Federation of Hemophilia
About this trial
The WBDR is an international observational disease registry of patients with hemophilia. It will provide a platform for a network of hemophilia treatment centres (HTCs) around the world to collect uniform and standardized patient data and guide clinical practice. With informed consent from the patient, the WBDR stores anonymous data about the person's disease, such as hemophilia type and severity, symptoms, and treatment.
Eligibility criteria
This trial does not accept healthy volunteersQualifiers
Patients of participating Hemophilia Treatment Centres with Hemophilia A or B, or von Willebrand Disease
Disqualifiers
none
Trial population
Patients of participating Hemophilia Treatment Centres with Hemophilia A or B, or von Willebrand Disease.
Trial design
Design model
Ecologic or community
Time perspective
Prospective
Treatments tested in this trial
Not listed
Trial groups
No trial groups listed
Trial outcomes
Primary outcomes
1
Number of participants recruited
Time frame
5 years2
Number of participating Hemophilia Treatment Centres
Time frame
5 years3
Number of participating countries
Time frame
5 yearsSponsors and contacts
Click on the lead sponsor to view all of their trials.
Source ClinicalTrials.gov