Health TrialsbyHealthPanel

Facioscapulohumeral Muscular Dystrophy (FSHD)

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Review clinical trials related to Facioscapulohumeral Muscular Dystrophy (FSHD). Use filters to narrow results by trial status, phase, treatment, biological sex and sponsor.

Condition / disease
Location
Status: Recruiting

A Trial to Assess Safety, Tolerability, Pharmacokinetics, Pharmacodynamics, and Preliminary Efficacy of SFL-0821 in Adults With FSHD

The purpose of this study is to evaluate the safety, tolerability, and preliminary efficacy of SFL-0821 in adult patients with Facioscapulohumeral Muscular Dystrophy (FSHD)

Participants needed: 90
Trial details
Phase: Phase 1, Phase 2Age: 18-65Biological sex: AllType: InterventionalSponsor: Soufflé Therapeutics, Inc.Updated: Oct 9, 2026Locations: 6
Eligibility criteria

Genetically confirmed diagnosis of FSHD 1 or 2 [+3]

History of any illness or any clinical condition that, in the opinion of the Inv... [+2]

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Status: Recruiting

BetterLife FSHD: A Patient-driven Health and Research Platform

BetterLife FSHD is a registry platform built to support people living with FSHD. It connects patients with personalized resources, tools, and research opportunities that match their health experiences and needs. At the same time, BetterLife collects secure health and experience data from patients to support research. This data is shared with researchers to help better understand FSHD and work toward improved care, treatments, and outcomes for the community. Learn more and enroll at: www.BetterLifeFSHD.org

Participants needed: 5,000
Trial details
Age: 1+Biological sex: AllType: ObservationalSponsor: FSHD SocietyUpdated: Feb 20, 2026Locations: 1Duration: 100 Years
Eligibility criteria

Individuals with a clinical or genetic diagnosis of FSHD, or individuals with a... [+4]

Individuals residing outside the United States or its territories [+1]

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