Diamond Blackfan Anemia Registry (DBAR)
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorNorthwell Health
About this trial
The purpose of this study is to maintain a comprehensive registry of patients with the rare inherited bone marrow failure syndrome Diamond Blackfan anemia (DBA).
Eligibility criteria
This trial does not accept healthy volunteersQualifiers
Normochromic, usually macrocytic and occasionally normocytic anemia developing early in childhood
Reticulocytopenia
Normocellular bone marrow with a selective deficiency of red cell precursors
Normal or slightly decreased leukocyte count
Disqualifiers
Any subject identified as having another bone marrow failure syndrome (eg. Fanconi anemia, dyskeratosis congenita, Shwachman Diamond syndrome, etc.) will be excluded.
Trial population
All subjects diagnosed with Diamond Blackfan anemia
Trial design
Design model
Cohort
Time perspective
Prospective
Treatments tested in this trial
Not listed
Trial groups
No trial groups listed
Trial outcomes
Primary outcomes
1
Understanding the epidemiology and biology of Diamond Blackfan anemia
Epidemiology
Time frame
yearlySponsors and contacts
Click on the lead sponsor to view all of their trials.
Source ClinicalTrials.gov