Effects of Posture and Quality of Life in Duchenne Muscular Dystrophy Children
ConditionChild, Only
Trial statusRecruiting
Trial phaseNot applicable
Trial typeInterventional
Biological sexMale
Age5-9
SponsorRiphah International University
About this trial
Duchenne muscular dystrophy (DMD) is an X-linked recessive neuromuscular disorder predominantly affecting boys and men, with an estimated incidence of 1 in 3,800 to 1 in 6,200 live male births. This condition leads to progressive muscle weakness due to the absence of the dystrophin protein, which is essential for maintaining muscle cell integrity. Symptoms and functional impairments typically become apparent by the age of two, and individuals with DMD have an average life expectancy of around 28 years. Treatment is generally multifaceted, focusing on enhancing quality of life (QOL) and postural control. The Alexander technique is employed to improve QOL and postural tone, as well as to modify body schema, with reported benefits from these changes. This method leverages spatial attention and executive functions that influence basic motor skills through targeted attention, intention, and haptic communication, thereby enhancing the QOL and postural control of the upper limbs. The aim of the study is to determine the effects of Alexander's technique on postural control of upper limb and quality of life in children with duchenne muscular dystrophy.
Eligibility criteria
This trial does not accept healthy volunteersQualifiers
Children suffering from duchenne muscular dystrophy,age between 5 to 9
Disqualifiers
Children with metabolic disorder
Children with accidental disorder
Children with recent of surgery
Children with mentally retard
Trial design
Design model
Parallel
Treatments tested in this trial
Alexander Technique Program
Other interventionAlexander technique involves postural and proprioceptive re-education and focuse on teaches the correct use of postural mechanism, coordination of trunk and head as a core relationship for good movement. In DMD neck muscles are compromised due to less amount of dystrophin and adopt bad posture of neck which decrease postural control and QOL. Through this technique participants will complete 12 training sessions within 6 weeks (2 per week) of 40 mins. Will examining body habits and patterns during various activities (5 min). Teaching and applying the basic principles of Alexander technique, including inhibition, primary control, and direction in various activities, such as sitting, standing, walking, studying, and lifting objects using tactile and verbal feedback (30 min). These exercises will perform to improve the neck, shoulder and upper limb muscles for strengthening and improve to upper limb postural control and quality of life.
Treatment groups
33 Participants
are divided into 2 treatment groupsGroup A: Group A, Alexander Technique Protocol GroupActive comparator 1 intervention
Group B: Group B, Routine Protocol GroupActive comparator 1 intervention
Trial outcomes
Primary outcomes
1
Postural Control of Upper Limb
Upper limb postural control will be assessed using the Postural Control of the Upper Limb (POUL) scale. The tool evaluates scapular alignment, shoulder stability, elbow control, wrist posture, and hand positioning during functional tasks. Higher scores indicate better postural control.
Time frame
3 monthsSponsors and contacts
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Source ClinicalTrials.gov