Endometriosis Self-Management Strategies
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexFemale
Age16+
SponsorWageningen University and Research
About this trial
The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: \[How\] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis?
Participants will describe the everyday actions they take to live with endometriosis, through diary studies, interviews, and focus groups.
Eligibility criteria
This trial does not accept healthy volunteersQualifiers
living in a European country
16 years or older
having been diagnosed with endometriosis or very likely to have endometriosis based on a previous assessment, even if not having received a definitive surgical diagnosis
fluent in a language spoken by the research team
Disqualifiers
not meeting one of the inclusion criteria
Trial population
People living with endometriosis who are above 16 years of age and residing in Europe; family/friends/partners of people living with endometriosis. Also, healthcare providers and policymakers.
Trial design
Design model
Ecologic or community
Time perspective
Retrospective
Treatments tested in this trial
Not listed
Trial groups
150 Participants
are grouped into 1 trial groupGroup A: People living with endometriosis across Europe
Trial outcomes
Primary outcomes
1
Lived experiences self-managing endometriosis (Qualitative narratives through interviews and diary studies)
People will discuss their lived experiences self-managing endometriosis, discussing what everyday actions they do to feel their best (qualitative narratives, lived experiences collected through interviews and diary studies)
Time frame
From enrollment until the end of focus group participation, up to four yearsSponsors and contacts
Click on the lead sponsor to view all of their trials.
Wageningen University and Research
Lead sponsor
University of Edinburgh
Collaborator
Source ClinicalTrials.gov