Improving Access to Pelvic Health Physiotherapy for Endometriosis

ConditionEndometriosis
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexFemale
Age18-45
SponsorUniversité de Sherbrooke

About this trial

This is a mixed-methods study aimed to generate new evidence to help optimize access to pelvic health physiotherapy (PHPT) for women living with endometriosis in the province of Quebec (Canada). Specifically, the objectives are to:

Obj. 1: Understand the patient journey of women living with endometriosis, including their experiences accessing PHPT.

Obj. 2: Describe current PHPT clinical practices and service delivery for women living with endometriosis in Quebec.

Obj. 3: Identify barriers, facilitators and potential strategies to improve access to PHPT services and optimize the patient journey of women living with endometriosis in Quebec.

Findings will inform clinical, organizational and policy recommendations to strengthen the integration of PHPT within multidisciplinary endometriosis care. The project is divided into three sequential parts:

Part 1: Semi-structured individual interviews (open-ended questions) will be conducted with women living with endometriosis to explore their journey to obtain endometriosis care, experiences accessing PHPT and perceived barriers and facilitators. Approximately 15-20 participants will be recruited until data saturation is reached.

Part 2: An online cross-sectional survey will be conducted among pelvic health physiotherapists practicing in the province of Quebec, Canada to describe current clinical practices, service delivery and challenges related to the management of women living with endometriosis. The minimum expected sample size is 225 physiotherapists .

Part 3: Semi-structured focus groups (open-ended questions) will be conducted with women living with endometriosis, pelvic health physiotherapists, physicians and healthcare managers to identify and prioritize strategies to improve access to PHPT services. Approximately 24-32 participants will be recruited across four focus groups.

Across all three parts, recruitment strategies will aim to ensure diversity in participant characteristics, including geographic region, sociodemographic characteristics and healthcare experiences, to capture a broad range of perspectives.

Eligibility criteria

This trial does not accept healthy volunteers

Qualifiers

Female (biological sex at birth)

Aged between 18 and 45 years old

Residing in the province of Quebec, Canada

Able to speak and understand French

Disqualifiers

None

Trial population

Part 1 will include women living with confirmed or suspected endometriosis in Quebec, Canada. Part 2 will include pelvic health physiotherapists practicing in Quebec, Canada who provide care to women with confirmed or suspected endometriosis. Part 3 will include women living with confirmed or suspected endometriosis, healthcare professionals and healthcare managers involved in the organization, delivery or support of endometriosis care in the province of Quebec.

Trial design

Design model

Other

Time perspective

Cross-sectional

Treatments tested in this trial

Not listed

Trial groups

No trial groups listed

Trial outcomes

Primary outcomes

1

Patient journey and experiences of women living with endometriosis

Patient journey, healthcare experiences and use of pelvic health physiotherapy will be explored through semi-structured individual interviews with women living with endometriosis.

Time frame
Baseline
2

Barriers to accessing pelvic health physiotherapy

Assessed through the online survey, semi-structured individual interviews and group discussion with patients living with endometriosis, healthcare providers and healthcare managers.

Time frame
Baseline
3

Facilitators to accessing pelvic health physiotherapy

Assessed through the online survey, semi-structured individual interviews and group discussion with patients living with endometriosis, healthcare providers and healthcare managers.

Time frame
Baseline
4

Pelvic health physiotherapy clinical practices and service delivery

Assessed through the online survey.

Time frame
Baseline

Secondary outcomes

Other outcomes

Sponsors and contacts

Click on the lead sponsor to view all of their trials.

Université de Sherbrooke

Lead sponsor

Réseau Québécois de Recherche sur la Douleur (RQRD)

Collaborator

Association Québécoise de la Physiothérapie (AQP)

Collaborator