Post-Intensive Care Syndrome - Multicentre Prospective Registry Database of the DACH Region

ConditionsPICSPICS-F
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorMedical University of Vienna

About this trial

Post-Intensive Care Syndrome (PICS) refers to long-term cognitive, physical, and psychological impairments that can arise after intensive care treatment. These symptoms may begin within 24 hours of ICU admission and persist for years. Affected patients and their families (PICS-F) face significant burdens, with up to 94% of relatives impacted. Given its high prevalence and socioeconomic impact, this prospective registry study aims to identify risk factors and long-term consequences of PICS and PICS-F.

The study consists of six modules, starting with data collection during ICU stays and continuing with follow-ups at various intervals post-discharge (up to five years). The primary goal is to investigate diagnostic and therapeutic strategies, while secondary objectives include identifying risk factors, determining impairment severity, and exploring biological mechanisms. Standardized questionnaires and biological samples (blood) are used for data collection.

Eligibility criteria

This trial does not accept healthy volunteers

Qualifiers

Patients with an ICU stay longer than 72 hours will be included

Disqualifiers

Age < 18 years old

Patients who receive end-of-life care at the time of screening

Trial population

Intensive care unit patients

Trial design

Design model

Cohort

Time perspective

Prospective

Treatments tested in this trial

Not listed

Trial groups

No trial groups listed

Trial outcomes

Primary outcomes

1

Diagnosis of Post-Intensive Care Syndrome (PICS)

Frequency of PICS diagnosis defined as the presence of at least one new or worsened impairment in one of the PICS domains (number/percentage)

Time frame
up to 5 years

Secondary outcomes

1

Frequency of PICS sub-domains

Frequency of diagnosis of PICS-subdomains

Time frame
up to 5 years
2

Frailty status

Frailty status assessed by the Clinical Frailty Scale (CFS; score 1-9, higher scores indicate worse frailty).

Time frame
up to 5 years
3

Post-Intensive Care Syndrome symptoms assessed by the PICS Questionnaire (PICSq)

PICS symptoms assessed by the PICSq (validated questionnaire 0-45 points; higher scores indicate greater impairment).

Time frame
up to 5 years
4

Physical function assessed by the Barthel Index

Change in activities of daily living, assessed by the Barthel Index (score 0-100; higher scores indicate better function).

Time frame
up to 5 years

Other outcomes

Sponsors and contacts

Click on the lead sponsor to view all of their trials.

Medical University of Vienna

Lead sponsor

Charite University, Berlin, Germany

Collaborator

University of Wuerzburg

Collaborator

University Hospital Augsburg

Collaborator