PROSPECT Registry for Individuals at Risk for Genetic Prion Disease
ConditionPrion Diseases
Trial statusNot yet recruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorUniversity Hospitals Cleveland Medical Center
About this trial
PROSPECT is a prospective observational registry and longitudinal natural history study of adults at risk for genetic prion disease.
Eligibility criteria
Qualifiers
Age ≥18 years
At risk for genetic prion disease based on family history
Willing to comply with all study procedures including genetic testing and longitudinal follow-up
Resident in the United States
Disqualifiers
Lacking capacity to independently consent at time of initial enrollment
Symptomatic of prion disease at time of initial enrollment
Inability to provide a backup contact
Trial design
Treatments tested in this trial
- Not listed
Trial groups
1,000 Participants
are grouped into 1 trial groupLocations
Sponsors and collaborators
University Hospitals Cleveland Medical Center
Lead sponsor
Case Western Reserve University
Collaborator
CJD Foundation
Collaborator
Prion Alliance
Collaborator
Source ClinicalTrials.gov